One of the Hard Days…


I don’t doubt God’s providence. In fact, I’m thankful for it. But that doesn’t mean there aren’t hard days. Last week was one of them.

We sat in a near empty local restaurant that is usually overflowing out the door with waiting families. But on this night it was graduation for Evan’s high school. We could have participated, but we chose to avoid the overwhelming festivities. Sitting through an extra long church service or even an especially long restaurant dinner can be asking too much of Evan. So hours on end of listening to name after name on graduation night seemed like a disaster waiting to happen. Who are we trying to please by forcing him to sit through the ceremony? What ‘should have been’ now seemed unnecessary pomp and circumstance.

It’s still one of the hard days.

My tiny town’s local newspaper is flooded these past days with picture after picture of smiling graduating faces. And that’s as it should be in small town America. These are the same kids Evan has grown up with, went to kindergarten with. The same kids he high-fives in the high school hallways. These are the kids I see in their graduation gowns on the verge of the rest of their lives.

I am so so happy for them, especially the kids I know personally. But it’s still one of the hard days.

I love my little hometown. But disability is hard here. Or maybe I should say, disability is boring here. There aren’t many options for the special needs graduate. Graduation is a harsh reminder how ill prepared the special needs ‘graduate’ is. Like most small towns in America, things have been done one way for a long time here. Change won’t be happening overnight here for those with disability. Options are limited. And the options we do have aren’t working out for Evan.

I know God has a plan. We just have to work a little harder with Evan to figure out what that plan is going to be. But it’s out there.

I don’t like writing about the hard days. I don’t like people knowing about the hard days. I want others to know about the joy of special needs. The hope I have in Christ in the midst of disability. I want everyone to know how those with special needs are not a whole lot different from those without that label. But just like those without the disability label, there are hard days. This time, what others deem a happy day just happens to be one of my hard days in disability.

I am trying to remember just because it is a hard day doesn’t mean I can’t have joy. It doesn’t mean I can’t have hope in Christ. I just have to work a little harder to find it on one of the hard days.

7 thoughts on “One of the Hard Days…

  1. Thank you for being real and sharing your hard day. I totally related to the ups and downs. Those hard days I try and remind myself to find joy in the journey.


    1. Thanks for reading & commenting. The hard days will come for all of us. Disability’s hard days just tend to be different, don’t they?


  2. Getting ready to go through those same hard days here. I know completely what you are experiencing, you are not alone. Still wondering if my son will even walk with his aide to the front. The anticipation of what may happen is at time overwhelming. But, graduation will come and go. Tomorrow will come and God is still there. Still there, with His plan for us and our child, whatever that looks like. His grace is ever lasting and I thank God for that grace, always. Thanks for sharing your story, it makes others realize we are not struggling alone, There are others with challenges like we have. May God guide your family through and see you on the other side where “the Son” will shine. May God bless you always!


    1. Isn’t it so good to hear from others, Linda? My prayers will be with you & your son on graduation. No one understands just how tense that day really is because of all the ‘what ifs.’ But you are right. It will come and go. And we will live to tell of God’s glory through it all.


  3. Thank you for sharing your heart!!! We are new to special needs, 3 year old granddaughter. Our God always sends more of His Grace on our hard days, and a glimpse of His Amazing Love too. Our mustard seed faith is moving mountains little by little. My He bless you today, so thankful that on the hard days Jehovah Shammah, The Lord who is there, with us.


    1. Thanks, Sissy! So good to hear about your journey. I know God draws me closer on the hard days. It’s so easy to drift away on the easy days. Thanks for sharing.


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